Dad's Journey, Uncategorized

Navigating a New Way of Life

IMG_4806Things have been a bit stressful these past few months. The day before my birthday we received confirmation that my dad has both frontal lobe dementia and ALS (Lou Gehrig’s disease). While we all suspected the news was coming, I was in total denial about it and sorta still am in denial about it. The only blessing is that with dad’s dementia, he doesn’t realize that he has ALS.

We learned that dad’s ALS is likely tied to his time in the military. Apparently it’s a growing trend with military veterans being diagnosed with ALS. While dad never served overseas, he did work with many types of chemicals for warfare and whatnot. I don’t know all the specifics about what he did, but I do know that back then they never wore protective gear (masks, gloves, etc). Even with his actual job (post military) he dealt with a vast array of chemicals and of course they never wore protective gear for that as well. It was never a concern back then.

Now we are navigating a new way of life. We’re learning about ALS as well as dementia. Dad is no longer driving (he thinks the doctor told him that because he’s not wearing his hearing aids), but that’s not the case. We’re trying to keep dad happy with continuing with activities that he loves: going to the gym about 6 days a week, going to NC State football games, dinner with friends at his favorite restaurants (42nd Street Oyster Bar and Hayes Barton Cafe) and most recently a trip to the NC State Fair.

I’m going to try to keep this blog regularly updated about dad to eventually share with family and friends on how he’s doing and all the activities he’s still involved in.

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My Bucket List of Bands

I Got Hot Sauce in My Bag

Let’s get in formation.

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I was BEYOND stoked to see Queen Bey at Carter Finely on May 3rd… I just wish I had dressed more appropriately for the weather.  Note to self: don’t wear a long dress + suede boots even if there’s a chance for rain.

En route to Carter Finley the bottom fell out- rain, thunder, lightning + hail. Fun stuff, y’all.  The best part was we didn’t have to pay for parking due to the storm- woot, woot!! After tailgating in the parking lot for awhile we decided to make our way in so we could see DJ Khaled.  We got there in time to see the tail end of his performance.  It never fails: I will forever laugh every time I hear him say, “DJ KHALED!”

Beyonce opened to Formation, which was lit and the rest of the show followed suit.  When she opened to Formation she wore a victorian inspired look by DSquared2.  Other notable designers she rocked during her performances included Balmain, Roberto CavalliAtsuko KudoGucci.  To see her complete looks check out Fashionista. During the middle of the concert the bottom fell out again and we had to evacuate Carter-Finley to either the PNC Arena or the NC State Indoor Practice Field.  We chose the indoor football field, because we wanted to see what it looked like. It was nice + still smelled brand new, or maybe that was the fake turf. It wasn’t until close to 11PM that we were allowed back into the stadium.  Like I mentioned before, I wore the wrong outfit- my long Pink Stitch dress + Dolce Vita Grayden boots which were covered in mud.

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By the time the show started back up again about 25% of the crowd had left.  We were bound + determined to stay for the entire show even though I knew my tail would be dragging next day at work.

Beyonce’s show was absolutely PHENOMENAL! My favorite performances of hers was Formation, Run the World,  Ring the Alarm + Freedom.  She performed Freedom in a pool of water + it was sick!  A bittersweet moment is when the screen went purple and they played Purple Rain by Prince. It gave me chills.

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Setlist from the show:

  1. Formation
  2. Sorry 
  3. Bow Down
  4. Run the World
  5. Mine
  6. Baby Boy
  7. Hold Up
  8. Countdown
  9. Me, Myself + I
  10. Runnin’ (Lose it All)- Naughty Boy Cover
  11. All Night
  12. 6 Inch | I Care | Ghost
  13. Don’t Hurt Yourself
  14. Ring the Alarm
  15. Diva
  16. Flawless
  17. Feeling Myself (Nicki Minaj cover)
  18. Yonce
  19. Drunk in Love
  20. Daddy Lessons
  21. 1+1
  22. Purple Rain (Prince tribute)
  23. Crazy in LoveBootylicious
  24. Naughty Girl
  25. Blow
  26. Die With You | Blue
  27. Freedom
  28. Survivor
  29. End of Time
  30. Halo

I didn’t get home until after 1AM, but that didn’t mean I crashed immediately. I had to shower after being covered in rain/ mud and then I spent about a good 30 minutes working on rescuing my boots.  The good news is they survived the Formation Tour!